Chordoma Foundation Award Presentation

Um, so it's my cooperation for the third time. Was the word data in 2015 about 24 experts around the world worked together to develop thirst of base incentive recommendations for how bottom machines, and each guideline published in 2015 an incredibly important process for doctors and patients alike. For current European team and guiding crime before Cordoma service financing. And last year, the Cordoma Foundation, the Cordoma team added international standard to launch, and numbers of AO finds throughout the group together again to update the guidelines for primary requests for the second amount of published, uh, in the last ten years. And that group now numbers, um, over 150 experts from 90 institutions in 20 countries. So collaborations. Um, the result of the work is method guidance that many of you heard about minutes at PRW, and that will be coming out again tomorrow at the conference And I'm so happy to mend the reward because, um, this work is especially meaningful to me because the original 2015 guidelines was published in my short week at Cordoma Foundation. And so one of my earliest projects is creating a patient-based version of the guidelines that would help patients and family understanding Cordoma should be treated so that they could have informal conversation. With their doctors and keep that best possible care. And there had never been anything like this patient before, so it was just incredibly meaningful information. And since then, this patient version has been available on our website instead of languages, and our patient navigator shares the patient. So it was just important to be part of the being and supporting through the basis of problems. So in order to come to electric methods, um, we, along with team in the lawn, organized an in-person meeting, um, last June in Milan, and, um, me in that room has just really kicked for that. Um, nearly a hundred people participated, um, numbers are most participants, and for all specialties in this one as well on the diagnosis. And, you know, these are positions at the top of the dealers. They're incredibly busy people, many of whom travel so very long way. And they gave an enormous amount of time, body, and energy to the traffic. They got different expertise, different experiences, and different things. But everyone was there for the same reason, which was all for sure that people for them get possible. Based on the most recent evidence, no matter where they are. Um, and for me, only one part of it. There was literature, the preparation, the discussion, writing, the revising, the more revising, and um, your end was always something that will help program patients and guide program later for years to come. So, um, tonight, on behalf of the program. And especially patients and families will have this course, we want to honor and celebrate this Canadian group. Um, and I'm, I really believe that several numbers, not all, but several are here tonight. Um, so I, um, if you are hard, I would love it if you would come up to the stage for, for accepting this award and take the picture.