Chordoma Foundation Underground Impact Award

Now this, uh, my voice is, uh, it might be over anymore that, um, we are just going for the last is to everybody's, uh, going essentially for me The hold that, uh, just a water happens, which I as a procedure walk simply from managing to make my way over the road, being numbered, so in the car that I can see very well. I can't walk away a lot more. I can see very well. Basically, you can't walk, can't talk. Probably just take about one time to just remember the topic secrets if lost. We must create a six monthly foundation nearly set up in January 2007. And last month of surgery, you there was the seventh surgery that of the Uh, interviewer, the last room was that they hand is very still, Dr. Bogart, you're good to hand. Uh, some, uh, rules along the way, uh, actually a few questions along, but uh, touch usually guys, sometimes people get better, uh, the evidence. What we do in the UK, however, we came to my fight in my college star, simply help notice that the people who live over there on the water, uh, data quarterly, two percent of the thirty, uh, um, for quite economical with your arguments, as in why we still find a We figured out a place for my father for that performance called a perfect. In the UK they call flats. So it's associated as a chain of flats. And remember the past weekly goes in the group. And he was an elevator, and I, uh, because of my key that's not being happy for the list. So it's a lead brother. And if you have a small guy like me, the so that we describe a guy is the word. Except it's not, which is very close to the word, where we think that we should go take away. That's the importance of Mindage is a very communicate with each other. It's so important. So in the likely dive marks, you're usually processed. Second property or a foreign country of thirty five or six migrants, and I'm getting Madama and five similar floor. At the same time, a great amount, you know, We're not also best that contained like these, uh, capable. Fair number of critics. We probably heard this joke before. What do you call the dogs? You know, we call them. Um, you know the difference between car and garments. Anyone started from all the So like we have several lines taking desire to test so far. And I have to say in over the years, the whole waiting with the Romain has really strong and has really made the impact on so many patients as an ability to help patients navigate their disease to help understand their disease is to make sure that patients As one of the can, one of the foundations can help patients get the right care at the right place and at the right time. And you know, probably the readers that the Corona Foundation is undertake, that's when there's probably one of the most important things that the Corona Foundation has been able to achieve. Because as a number of experience, we also know. Your test chance that sustainable recovery lower survival, your test set well, that begins to be very first surgery. So getting that ear feet right is so important. And so the fishing navigation service that the Gordon Foundation, uh, has built, I had a small planning on the board. It has, uh So the navigation, uh, opening willing to depth some very delicate photography, nothing is topic of seven percent. And some of you maybe many humanism known Sharon as a service advocate for Cordoma patients. Sharon herself lived with a Cordoma diagnosis for more than two decades. In Sally last year, November, Sharon passed away in complications for her disease. Sharon, versus another pick myself out over the house and looking at quotation for site And the line to take to the place, it was increased on adversity. And the chairman certainly acquised that in full. She took the challenges that she faced head on. She encountered so much difficulty during her time of Cornova, and she turned her adversity, and she took the government. To all that in terms of people, she helped hundreds of corona patients come to diversity. She helped them with connecting them to resources, to walk along, guide them, to tireless, overdose and solace and comfort to so many patients, and was proud to not emerge another giant wall in the corona period. Now, I also want to emphasize another fact, you know, my question of that. So I'll be quite on this one. You want to emphasize that post quarter of certain myself to so much attention is focused on ourselves, the Roma, and our diagnosis, our experience, our disease, our prognosis. Our fears and our worries. So most of us could not, survive without the care and support a caregiver in most cases, our spouse, certainly my case, without my wife caring and her advocating for me, and walking on the side of the encounter, my presence is typically emotional, fall up and Handling the worry, so much of that fell, it has fallen around as well. And so it certainly hasn't a team effort. And I'm doing today the large project just there, and we're just because of the corona foundation, operating story and navigate my disease, it's a third community helpful. So as much as we're clearly responsible. In large part, um, years and it seems true that Cherok was as giant as he was to the corona community. Emphasize that Sharon was sure in large part because of Russia Roth. The ROP certainly for sure was an absolutely tireless adapting for her house. He, uh, team of control over the ADC team to Cordova, uh, community government multiple times, one of which the challenge is a being a carrier, he opened the advocate for share on a carrier, he emphasized asking for help is an avenue only myself because they ask for help. The truth is that people in general in our circles want to be asked for help. It helps in the building, and it's really just so over recognizing outside the role that our carriers play in our Corona journey. And so, uh, with couples like Robin Jurin line, the Corona Foundation has initiated. An award calls the Underground Impact Award, and it is my great honor to present that award tonight. We all shared this year with us for a certain stand to put us in spirit for another volunteer for all, they get us award. General closure prepared, however, we should read the top following that. Today or there's a little more that I can add to what you and Josh would say. Sharon, like you mentioned, Josh, for most of our over two decades, and I don't think she ever really once felt significant amount of subconscious. Certainly the initial sequence. Uh, treatment and operator as well as it could have, and she finally met with one of those experts, and they met each other. Shannon asked, How can you help patients? So that's patients, um, seeking that. And that really became Shannon's mission. It was 19 years ago to speak. We shall be from University for Sharon treatment. Um, at the time we had only two person police centers in the United States, and that was counter fifteen, which is just standard accomplishment of itself. Think about that. Um, she only interactive Sharon, um, Mary She was, um, left her full time job, but she has to be lost job. All over decades. And during the initial few months of recovery, she took those words about how she could make the things continued to impact the lives of other patients. Around that same time, Shannon is in close contact with a number of others. Including my Tori, Mr. Surance, and most welcome here for the people with us. When I think about the award, when you see today on behalf of Sharon and myself, we would not be here without the contributions who helped to inspire us and move us to make the program and rent for the community. I could probably speak the spirit popping up Sharon. But in thinking about being here today, I realize what better way than for us to hear Sharon speak herself. In 2013, the Production Leadership decided to have a documentarian for quarterback. So I think it's a big time for us to go and care about. Very scary to know that this is a serious debate as long cancer. I know I am waiting. If you explain that to you, how much my game will No, can't even heard it. There was office had heard it. So we like to, like, so that is a weird change on our question. When we want to make sure they should. And sharing and worrying and finding which is not my strategy and updating on the internet. The number of foundation gives me home, which is most important that we ask for. Feel very lucky as much as I've been able to utilize my time to help others and volunteer with the foundation to logic based on trying to get one so that crossover can expand in AK. How is that influence? The race and get to help so the long organization overwise better community and same all have a peace life. So as I stand here today, think about how much everyone put into the staff, the leadership, the board directors, the biology board, all the researchers, the religions that work together. It is really smattering how much it's been accomplished. And so I'm here today to really celebrate Sharon's role, so everyone's all getting us to this incredible point. We accomplished so much. Too little space about that video she varied on the Sharon sitting up here to text. We're now at 400 meters. And that last count is over four thousand. And one thing Sharon was seen, and we remembered last several, um, Sharon said that time she revived her childhood passion for art and painted art. And around the time of that video, Sharon began to send out cards. So, like, here's an example of one. Maybe this would be problems. I understand the happening train. Um, Sharon and I'm excited to try to talk about how many that she actually said. I think somewhere between Two and 2500 college conference to both patients and doctors and researchers looking at for the same lab, the determination and courage to fight. Um, for a trip. And so, um, and really this might honestly be here to all you have to have a share that seekers all the bottom. Um, Sharon five years ago, um, eleven months after several still, um, engineering act daily called COVID on the issues, gave a speech of the NY, um, one-day conference She spoke to more evidence about some of the ways and means that got her to the process of. And something that I found in for sure, but she was what we have to show is similar to what Just discussed, um, was also talking about at that first conference, which was to find the coverage, to realize we can always do more And have value support to the result. And so that will be my one being with all these five things. So thank you very much for attending this award and truly around success. Thank you so much.