Findings & Breakthroughs
Care Breakthrough Updated global guidelines published (JAMA Oncology)
The consensus update for primary localized chordoma is now published, written by 150+ experts from 90 institutions in 20+ countries. The patient version is on the Chordoma Foundation site.
Silvia Stacchiotti · Istituto Nazionale dei Tumori, Milan
· Global Consensus & the 2026 Guidelines
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Care Pediatric virtual tumor boards
A worldwide expert panel will review pediatric cases held at morning and late-night times. Poorly differentiated chordoma is more common in children.
Mary Frances Wedekind · National Institutes of Health (NCI)
· Pediatric Chordoma Network
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Care Massage caution after neck radiation
Two patients with cervical chordoma fainted after massage (carotid sinus syndrome). Tell body-work providers your treatment history.
Lisa Ruppert · Memorial Sloan Kettering Cancer Center
· Survivorship & Rehabilitation Medicine
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Care Grow your care team beyond the 'big three'
Add a physiatrist, PT/OT, supportive care early, nurses, and pain specialists. The new guidelines include rehab.
Lisa Ruppert · Memorial Sloan Kettering Cancer Center
· Survivorship & Rehabilitation Medicine
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Care Navigation + Patient Advocate Foundation partnership
Case managers help with insurance and money problems. The doctor directory was also redesigned to show more about each doctor.
Josh Sommer · Chordoma Foundation
· Welcome: Fireside Chat with Research & Clinical Leaders
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